7-year-old boy raises more than $30,000 for sick friend

Jonah Pournazarian and Dylan Siegel

Jonah Pournazarian and Dylan Siegel

Dylan Siegel and Jonah Pournazarian are best friends.  Jonah has been diagnosed with Type 1 glycogen storage disease.  It is a rare liver disease that does not have a cure.  Last fall, Dylan decided to raise money to find a cure for his best friend.  Instead of doing the typical lemonade stand he decided to write a book called: “Chocolate Bar.”

After 2 months on the market the handwritten and illustrated book garnered sales of about $30,000.  Dylan has a goal to raise $1 million.  Rabin Pournazarian, Jonah’s father, told ABCNews.com that a fund was set up for his son 6 years ago and has raised $400,000.

Jonah’s condition affects 1 in a 1,000,000 children.  Most days all he eats is cornstarch mixed with chicken soup with vegetables that his mother makes and feeds him through a tube.  His feeding schedule is sensitive.  At school, Jonah’s parents have had to ask parents of other children to keep their child home if they get sick or to at least notify Jonah’s parents so they can keep him home.

Dylan Siegel golding up his bookWhat could be a common cold … will land Jonah in the hospital for five to six days,” his father said. “It happened last month.”

Rabin said the money from the fund and book has been sent to the University Of Florida School Of Medicine at Gainesville where research is taking place under Dr. David Weinstein, who is working with 200 families.  He hopes the newfound attention brings forth a cure.

I wanted to share this story to help bring awareness to this disease and to recognize this little boy who is doing everything he can to help his best friend.

*If you would like to donate you can visit the book’s Facebook page or at this link.

*ABC News article

Email: realtalkdebate2012@gmail.com

Twitter: @adrakontaidis & @talkrealdebate

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About adrakontaidis

A conservative who doesn't pander to the GOP.

7 responses to “7-year-old boy raises more than $30,000 for sick friend”

  1. JF Owen says :

    Now that admirable young man knows how to stay focused and on task. Great story!

  2. reasoningpolitics says :

    What a great story. Thanks for sharing this.

    • realtalkrealdebate says :

      Thanks! I have some more stories to share, but I’ve been pretty busy. Hopefully I can post something tonight.

      Thanks for the comment!

      • reasoningpolitics says :

        Me too. I’ve hardly been writing at all this week.

      • realtalkrealdebate says :

        You at least manage to post once a day, I’ve only been able to check your blogs the past two days. I have like 5 articles to write about. Will definitely work on them for tomorrow.

        My eyes are closing or I would do it tonight. My only worry is that I lose momentum. The week before I got sick was my best with 300+ views a day then I got sick didn’t post as often and got like 130. Need to raise it back up.

        It’s just difficult when this isn’t your job and you primarily only post. Oh well at least people enjoy my posts 🙂

  3. gardenaki says :

    Great story!

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